Healthy Nutrition

I have learned about nutrition because I had to. I was really sick. Pain and fear were the big motivator that inspired me to learn about nutrition and learn to cook healthy. I’m basically a food addict, I love fatty foods, meat, pasta, dairy, bread and sugar,

I had to learn to create healthy vegetarian meals that tasted great or I wouldn’t make it. As a bachelor I lived on a staple of my daily green smoothies and green juice and a couple vegetarian or fish dishes.  My girlfriend and I have been together 2 years now, she has RA so is mostly on board with the vegetarian eating, but she is a great cook so we’ve experimented and created some delicious vegetarian dishes. Nice to have some variety!  Delicious food addict healthy vegetarian variety!

Let’s Start with Nutrition.  What I have learned is what is helps my Lupus | Rheumatoid Arthritis |Connective Tissue Disease | Autoimmune Disease and what hurts.  I have a short list below.   Basically, I have learned about Alkaline vs. Acid.  Food and drinks that make your body more Alkaline seem to help with inflammation.   Acid foods seem to worsen inflammation.

I am not a doctor or a nutritional expert, my recommendations come from my own experience over 16 years of living with MCTD, Lupus and Rheumatoid Arthritis.  The best recommendation I can make as far as nutrition is to try and eat as much organic vegetarian food as you can.  The more raw, whole, organic fruits and vegetables you eat the better.    I have struggled with this.  I have found a balance that works for me.  I eat approximately 70 % vegetarian.   Once or twice a week I allow myself some fish.and we do eat organic eggs a couple times a week.

I love a good burger or a steak now and then, but only as a treat or “Zag” day once a month..   I have learned to cook some deliciously awesome  vegan dishes and I have listed some of my favorites on my Recipes page of this website. I will be adding more soon.

Fresh organic fruits and vegetables are filled with vitamins, minerals, fibre, antioxidants, enzymes and yes, protein. .

I eat veggie burgers with lettuce vs a bun, veggie tacos with organic corn tortillas, veggie spaghetti with quinoa pasta, veggie stir fry, veggie wraps with gluten free (organic brown rice flour) Tortillas and of course veggie salads. I roast veggies, barbecue veggies and eat raw veggies with organic home made hummus. My girlfriend makes a gluten free  veggie lasagna to die for.  She make the noodles out of organic quinoa flour (grinds her own flour in the vita mix) and uses an organic raw cashew and nutritional yeast as white sauce replacement for cheese.  We make a Portobello stroganoff sauce that is gluten free (gluten free flour) dairy free (coconut cream vs sour cream) and uses organic veggie broth. It is my favorite meal. I usually put it over organic brown rice or organic quinoa.  She also make some pretty darn good sugar free, dairy free and gluten free desserts – like her Avocado, Coconut Cream, Agave, chocolate Mousse. You can use cocoa powder or organic cacao.

Another favorite is wild Alaskan cod – gluten free breading and baked.  I eat it once or twice a week. We get the cod at Costco and use gluten free bread crumbs and gluten free flour. We do use an organic egg as a binder,  Learn more as to what protein sources we eat in my Protein myth page.

The more vegetarian I eat, the better my body feels, and the better my digestive process works.  Eating mostly vegetarian also helps keep my weight down which helps my joints. I have always been a husky guy and gain weight fast if I don’t eat healthy and exercise.  Eating mostly vegetarian also helps keep my cholesterol and blood pressure low.

Dairy and Milk Products: I have eliminated most dairy milk products from my diet.  I don’t drink milk at all, I do still eat cheese though only sparingly.  Dairy has lactose and casein. I am pretty strict about not eating casein which is in all dairy including goats milk and cheese.

My big vice was espresso lattes and coffee creamer. I don’t like almond milk and I don’t eat soy.  Today I drink coffee  with coconut cream instead of creamer, it’s actually very tasty..  I’ve talked to others that use rice milk or soy milk in place of milk. I don’t eat or drink soy products. I take a cup of coffee from the Keurig, pour it in the vita mix blender with a small spoonful of coconut cream (not coconut milk)  Coconut Cream – comes in a can at Trader Joe’s.  I whip it up in the vita-mix and voila! Tastes better than a latte and NO DAIRY!   We use coconut cream in place of cheese and sour cream in recipes like the Portobello  stroganoff and my spicy veggies to make them creamier.

Protein:   Since I don’t eat much meat I get my protein mostly from  quinoa, black beans, garbanzo beans,  fish, organic eggs and organic vegetarian protein mixes like “Maca Up” or “Metagenics UltaInflamX 360.” .  Believe it or not there is protein in vegetables as well. Some experts believe that we can get more than enough protein just from our vegetables and beans.  I think it is up to each individual to experiment and see what works for you.

Veggies have protein. It’s a scientific fact!.  Those that believe we need to eat meat to get enough protein, are simply misinformed.  It’s all in the nutritional science.

The challenge with getting protein from vegetables is not one individual vegetable has the complete Amino Acid chain to make up a complete protein, which your body needs to absorb and utilize the protein.  You have to eat or drink a variety of vegetables in order to get the complete chain of protein amino acids your body needs.

An option I sometimes use is I will add vegetarian organic protein mix to my juice ensuring I am getting enough protein and all the amino acids without the meat, dairy or Casein.

I will use Metagenics UltraInflamx 360 which is an anti-inflammatory blend of all organic ingredients designed to reduce inflammation.  It has a lot of Turmeric in it which is thought to have anti-inflammatory properties.  The protein comes from organic brown rice.

I also use a product called “Maca Up”

It is vanilla flavored (naturally) all organic and is a vegan protein supplement with the complete amino acid protein chain. It tastes incredibly good and makes my juice and  green berry smoothies taste awesome! The protein comes from organic peas and organic brown rice.

I eat a lot  of organic quinoa.  Buy it in bulk at Costco.  Quinoa is a low carb high protein whole grain that tastes great. It also has the full amino acid chain of proteins making it the perfect protein.  That is also why we learned to make home made gluten free quinoa pasta for veggie lasagna, veggie or shrimp fettuccine and veggie spaghetti.   Ok, so I used the word “we” a little loosely there, my girlfriend Brandi makes the pasta.  I am grateful for that!

No, I’m not a vegan nor do I want to be. Most of my vegan friends eat too much wheat, grains, sugar and soy.

I don’t eat any soy and rarely eat sugar or wheat. Why don’t I eat soy you ask? I used to. My first generation of smoothies was made with soy milk. First, 90% of the worlds supply of soy is genetically modified or GMO. No thank you! Some research says that soy can affect the endocrine system and I don’t want to eat anything that could possibly mess with my hormones

Fish like salmon, cod and halibut are a great source of protein as well as Omega 3 Essential Oils.  I eat fish 2-3 times a week
I only eat fresh or fresh frozen fish. I never eat farmed fish. When ordering fish at a restaurant I if they cant guarantee me it’s fresh and not farmed then I wont eat it.

I eat eggs but not much anymore. Just doesn’t appeal to me without toast and cheese!   It’s still animal protein but we use organic eggs to make the quinoa pasta and also in breading the gluten free baked cod.

Essential Oils: As previously mentioned, fish is a great source of essential oils, as are some raw nuts and oils that come from nuts.  Essential oils are called “Essential” because your body needs them but does not produce or manufacture them internally so they have to come from an outside source.

In addition to eating fish I also take a liquid supplement called Udo’s Oil 3*6*9    a product made by Dr. Udo Erasmus and essential oil fatty acidsavailable at almost any health food store, organic grocers and whole foods.  I drink a couple ounces a day.  Some people don’t like drinking it straight, it’s kind of like drinking liquid butter as far as the taste.  A trick I learned is to squeeze the juice from a small piece of fresh pineapple into the Udo’s Oil, the pineapple juice sinks to the bottom of the oil and is the last thing you taste when you drink it. I use a garlic press to squeeze out the pineapple juice. The Udo’s is a combination of different oils from nuts and designed to give your body the proper combination of omega 3, omega 6 and omega 9 fatty acids for maximum absorption into the body.  I believe that Udo’s oil taken daily over a long period of time has done wonders for my Lupus and Rheumatoid Arthritis.

Wheatgrass Juice: I try to drink 2 ounces of fresh, organic wheatgarss juice 2 -3 days a week.    I love Jamba Juice!   They serve fresh organic wheatgrass juice and ginger shots. They even make fresh juice now, but I stay away from their smoothies because they are loaded with sugar and some have dairy. They are in almost every metropolitan city I have traveled to in the US, and it is only a few dollars and change for a double shot (2 oz. of wheatgrass juice, they do the work and clean-up.  Wheatgrass juice is loaded with minerals,  a large percentage of all the minerals known to man.   If I am in a place I can’t get fresh wheatgrass juice, I have some powdered wheatgrass supplements I mix with water and drink.

Green Drink:  Green Drink is a powdered supplement that comes from all sorts of vegetables and grasses like wheatgrass and others, and again is loaded with vitamins, minerals and amino acids.  You just mix it with water and drink it down.   I  learned about green drink at a Tony Robbins Seminar and use a product that his company manufactures.  You can purchase green drinks at most grocery and health food stores.

Water: I can’t say enough about water.  We all know we need to drink more water but we don’t.  We are dehydrated most of the time.  I have worked really hard at drinking more water.  I have a water purifier on my sink at home and a brita in the fridge.  When I do buy water I only buy trusted brands of purified water.  Today you can even buy filters and water that is alkaline. Very Cool!  A rule of thumb is to take a small drink about every 5 – 10 minutes.  I was taught at a Tony Robbins seminar  that I need to drink half my weight in ounces every day. So I weigh about 220 lbs so I try and drink approximately 110 ounces a day.  Yeah I know,  lots of trips to the bathroom!  It’s not so bad.  Your body uses water to flush your system so it aids in removing toxins from your body.

I use a reusable water container most of the time,  but when I don’t have it with me I buy plastic bottles of water, but try to recycle them.  I wish they had more recycling receptacles in public spaces.  I hate throwing them away, but sometimes have no choice.  I am aware of the problem of plastic bottles filling up the landfills so I do make an effort to recycle most of the time.

Sugar: I don’t really have a sweet tooth, so sugar isn’t a big deal for me.  I don’t drink pop or sodas very often, they are really bad for you and loaded with chemicals and calories.  The occasional root beer at the movie theater is about it for me.   I do enjoy a small piece of organic dark chocolate as a treat.  I rarely eat desserts.   I have been told excessive sugar intake can contribute to inflammation so I try to keep it to a minimum.

Supplements:  I’m not big on lots of supplements.  I do take a multi vitamin and I also take Glucosamine , Chondroitin and MSM, vitamin D, vitamin B12 and fish oil. That’s about it for me besides my green drink or organic veggie protein mixes which have a lot of supplemental nutrition as well. I once saw a naturopathic doctor for my Lupus / Rheumatoid Arthritis who had me taking dozens of supplements and it made me sick to my stomach, so I have settled with just taking a few that I have found to make a positive impact for me.

Juicing : Fresh Juice!  I love it!  I have a juicer at home and make my own.  One of my favorites is Carrot, Apple, Beet, Ginger parsley, kale, spinach juice.  When you are drinking fresh juice you can taste the freshness and it just feels healthy going down and you get all the fresh enzymes, antioxidants, vitamins and minerals.

Cleansing and Juice Cleanse:  I have been doing juice cleanses for 16 years, ever since I was first diagnosed with MCTD (Mixed Conective Tissue Disease) which is a combination of Lupus, Rheumatoid Arthritis and Scleraderma.  I have a different take than most people I talk to who do a cleanse because I believe in nutritional support during the cleanse vs.  just juice.

The purpose of a cleanse is to aid your body in eliminating harmful toxins and chemicals that build up in our bodies and can cause health problems.  Our environment, processed foods, non-organically grown fruits and vegetable, the air we breathe, it is all contaminated and we ingest all sorts of toxins everyday.  Some of the toxins get eliminated, but our bodies can only eliminate so much at a time, and some of the toxins build up over time and our stored in our cells.
I believe in cleansing, but I also believe in healthy nutritional support while I do a cleanse. I do a juice cleanse 2 times a year, usually for  7 – 10 days.
Here is what I do.  Prior to the cleanse I eat strictly vegetarian for at least 2 -3 days. This gets my digestive system cleared out and ready to go for the cleanse.   I also do that because the first time I did a juice cleanse I had been eating meat the day before which tends to clog my system or at least slow the digestive process,  and when the toxins were being released into my system with the cleanse they couldn’t get out of my body fast enough and it caused a lupus flare up.  I haven’t had that problem when I eat nothing but veggies for a few days first.

I use a product called Ultra InfamX 360 by Metagenics, which was recommended to me by a Naturapathic doctor in Seattle.   It is a powdered supplement designed for eliminating toxins in people with inflammatory diseases and has anti-inflammatory ingredients like turmeric. .   It has organic brown rice protein and all kinds of vitamins, minerals and amino acids so it gives your body plenty of nutritional support throughout the juice cleanse.  It has worked well for me.

I make fresh juice with organic apples, carrots, beet , kale, parsley, and ginger,  then I mix the UltraInflamX  with the juice and drink it three times a day.  Between my cleansing shakes I drink lots of fresh vegie juice and a whole lot of water.   I also like to go to the gym and sit in a sauna and sweat out those toxins.  I can’t stress enough to drink alot of water.  5  – 10 days and I am refreshed, cleansed, full of energy and ready to eat again.

After the juice cleanse I usually ease my digestive system with only veggies for a day or two before adding other carbs or any animal or fish protein. The other thing I have done during a juice cleanse is colonics.  I was introduced to colonic treatments at Tony Robbins  Seminar, which is by far the most comprehensive health (and Life) seminar I have ever attended.  I highly recommend it.  Colonic treatments infuse your colon with purified water and aids your body in eliminating built up toxins and fecal matter from the walls of the colon.  It works.   I felt a little nausious after the first treatment, but by the third I felt great.  I highly recommend colonics as a part of your cleanse, but also must add that you should consult your doctor first.

18 Comments

  1. Your article is very motivating and also give hope. I like to request an advice, my wife is dignosed with SLE(Lupus) and is affecting her kidney , she was hospitalise for kidney failure more that twice and it seems that Doctors are not sure on what to give her .

    Can you please help with kidney solution before it went to dialysis

    kind Regards,

    Benny in South Africa

    • Hi Benny,
      As a simple patient I cannot make recommendations, I am not a Doctor and know nothing about kidney failure. I would encourage you to keep searching for info, maybe try to find others who have had similar symptoms and challenges. I do know that there are varying degrees of Lupus, it can be very severe as it sounds like in your wife’s case. My heart goes out to you, I hope you find a solution. Take care and God Bless!

    • Wow! My heart goes out to you. I know nothing about kidney failure so I can’t offer any advice. Work with your healthe care professionals – Doctors, Naturopaths, nutritionists – keep asking questions and keep learning. I know there are varying degrees of Lupus and mine is fairly mild compared to alot of people. Best of luck with your wife! I hope she is doing better. Keep doing research and looking for answers!

    • Benny, I’m not a doctor either but my grandma had kidney failure and as her primary caretaker, I know a lot about it. The doctors have probably already told her, but she needs to stay away from foods high in potassium, phosphorous, and sodium and absolutely no imitation salt. This may completely contradict the article, but she also needs to limit her fluid intake because her kidneys can’t filter out the toxins and it will cause inflammation and more stress on the kidneys. In line with the SLE tips, alkaline water is the best for her. Also, do anything you can to limit the sugar intake and maintain low blood pressure. Best of luck to you and your wife, Benny.

    • Hi Kitty – I am currently completely off all medications. Occasional ibuprofin when I have joint pain and muscle aches. I have been eating mostly vegetarian for years now which I know has made a significant difference over time. Just like it takes a long time to deplete our bodies of nutrition it also takes a long time when giving our bodies proper nutrition to get our vitamin and mineral levels up to where they need to be for our bodies to function at an optimum level. The last time I took prednisone was in February 2011, I had an awful flare up brought on by emotional stress and a new medication my Rheumatoligist wanted me to try. Not fun! They had me back to 60 mg of prednisone in no time and it took 2 months to step down and be predinose free again. Our bodies and our responses to various mediications as well as the severity of our symptoms vary dramatically. I am very fortunate that my disease is fairly mild most of the time, but I do have inflammation throughout my body which can cause many other mediacl issues as well like atherosclerosis (heart disease) and others. That is why I eat as nutrional as possible – it has changed my life.

  2. Thank you for the response! Your blog has motivated me to embark on a vegetarian lifestyle.

    My second question to you is do you have joint damage or joint deformities in your joints. If not do you think changing your diet help reverse all the joint damage. I have had RA since I was 16 years and refused to take medication over the years due to the severe side effects. I have tried many alternative routes but i failed within months. Now I am 24 years old and have joint deformities in my wrists and ankles and severe inflammation and swelling. I have now succumbed to take all of the medicines my Rheumy has given me. Now reading your blog I will try the vegetarian diet change. I am so afraid that my joint deformities are permanent.

    • Kitty – I am so sorry to hear about your joint pain and deformities. I can only imagine how hard that must be. I have constant joint swelling and pain but no visible deformities. I also have gout in my foot joints which can be very painful and debillitating at times. When I am eating a strict vegetarian diet and taking all my supplements and nutrition especially wheat grass juice and Udos Oil – I do significantly better. My best thinking is is to follow your doctors advice and and take whatever medications they suggest. Maybe discuss with them the benefits of nutrition and an Anti-Inflammatory diet.
      I am not a vegetarian, I do eat meat occasionally and I eat chicken and fish a couple days a week for protein but get most my protein in vegetables and legumes -black beans and chick peas etc… I consider myself a “Nutri-Tarian” I am all about proper nutrition. I am going to post a page on this site called “Anti-Inflammatory Diet” which will list things I can do “more of” to reduce inflammation and things I can do “less of” as well. Acidic vs. Alkaline. The # 1 thing I would recommend for joint pain is Udos Oil. It is a balanced essential oils of Omega 3, Omega 6 and Omega 9 fatty acids from various organic raw nut oils. It tastes like butter. I take a shot glass every day. If you add a little juice it goes down easier. I also add it to my breakfast smoothies. Unfortunately it is fairly expensive. you can get it at most health food, vitamin stores and whole foods carries it as well. It is developed by Dr. Udo Erasmus in Vancouver BC. I know many friends who take 2 to 3 , 1 ounce shot glasses a day of Udos Oil. The essentail oils help lubricate the joints. Do you take supplements like MSM, glucosamine and condroitin? They can help over time. Another anti-inflammatory supplement is Turmeric. I take a product called “Turmeric Force” by New Chapter. They also make the “Zyflamed” which contains turmeric and some herbs with anti-inflammatory properties. I take both Turmeric Force and Zyflamed. As with all supplements you have to take them consistently for awhile before they start helping. Best of luck to you Kitty! My heart goes out to you and I pray you find a combination of things that work for you to reduce your pain and challenges. Be sure to discuss any dietary changes and supplement regimens with your doctor first…..and drink lots of water! I drink 100 ounces a day.

  3. hello I was wondering if you have taken any intolerance food test such as the ALCAT. I am thinking of doing this test next week but it is expensive. Do you know anything about this test?

  4. I was diagnosed with mild Lupus very recently. I already drink more than half my weight in ounces of water daily and I love fruits and veggies, but I have a major sweet tooth and love my red meats. How would you recommend to ease into these lifestyle changes? Also, do you know anything about having kids with lupus?

  5. I was diagnosed with mild lupus at the age of 7. I am currently 21yrs old. I’ve been dealing with a lot of health issues ever since, back in June of 2013 I was diagnosed with posterior scleritis. The only thing that helps the pain is pulse steroids. I’ve gone through kidney failures, liver disease,heart disease,lungs,brain, JUST EVERYTHING. But now my biggest battle is my weight. Because I’ve been on prednisone now for 14yrs and it seems like I can shake it off.. PLEASE HELP

    • Hi Farydin
      Wow! Sounds like you’ve been through a lot of challenges from an early age. My heart goes out to you! Prednisone is a beast! It is a lifesaver at the same time it causes other issues like the weight gain you’ve described. I consulted a Rheumatologist for a second opinion back in 2002, he explained to me that long term use (more than 18 months) of Prednisone can cause more complications with internal organs so I tried for months and months to get by without it. At first I was unsuccessful, having lupus and connective tissue flare ups every time I tried. I was only taking 5 to 10 mg a day. Then I was at a weekend conference about healing and I met an energy healer that I worked with for about a year. I also started learning about nutrition and specifically nutrition for inflammatory conditions. What I learned is that meat, dairy, sugar, wheat and processed foods can all be inflammatory. I bought a vitamix smoothie blender and started making nutritional smoothies every day and eating mostly vegetarian. I still enjoy a good burger now and then but only as a treat. I have been fixing a nutritional Green-Berry smoothie almost every day (except when traveling) for more than 12 years. I’m on my second vitamix -first one burnt up about 2 years ago. Today my smoothies consist of (ALL Organic) almond milk, kale, spinach, chia seeds, Udos oil, gogi berries, an apple or banana, and frozen berries. Costco started selling organic blueberries, cherries, mango and an organic berry mix a couple years ago so that helps to buy in bulk to keep the cost down.
      I also cook vegetarian quite a bit and will eat organic Quinoa quite a bit. I drink 100 Ounces a water a day. I also make my own juice – usually kale, parsley, apple, beet, ginger and cucumber. Great way to get a lot of nutrition. I try and do a juice cleanse at least once a year for 7 to 10 days. Last cleanse I did was 8 days in early February 2014. I mix a product called Ultra InflamX Plus into the juice – gives my body added nutritional support and organic brown rice protein so my body gets proper nutrition in addition to the juice. My belief is that during a juice cleanse the body needs proper nutrition including protein so it doesn’t go into starvation mode, otherwise it shuts down and holds onto what it can including toxins. I have no scientific basis for this belief other than my own experience. As always I recommend you consult your doctor prior to any sort of juice cleanse or nutritional regimen. All I can tell you is what has worked for me and today I live relatively pain free thanks to long term nutrition regimen. If you were to start eating vegetarian and do smoothies and juicing, you might possibly be able to get off prednisone after 3 or 4 months. You’ll have to be strict with it for the first few months and of course talk to your doctor first and see if they support the idea. Living in pain really sucks but my experience is that pain is optional if we are willing to make drastic changes to how we eat. Nutrition has made all the difference to me in my life. Good luck to you I hope you find the relief you are looking for!

  6. Hey there, I started juicing about a month ago along with cutting out gluten and eating very little sugar. I have have had pain, fatigue and “viral infections” for over 40 years. I also suffered from strep throat, but Praise the Lord for colloidal silver. I have a big reduction in pain. Looking back, I’m certain my mom died from lupus. I don’t have a diagnosis, but I suspect lupus as well. I’m just gonna keep on doing what I can!

    • Good on ya Bobbie! The human body is amazing – for most people they can put garbage and poison in their system day after day, year after year and the body is resilient…. Until it isn’t anymore!
      I know for me that decades of poor nutrition and abuse contributed to the onset of my Lupus and MCTD diagnosis, and it has taken years of good nutrition to get my body to heal.
      My recent blood tests confirm the diagnosis of Lupus, Rheumatoid Arthritis and MCTD and inflammation throughout my body yet I feel 100% better when I am consistently eating good nutrition and juicing.
      I don’t know that I’ll ever be cured but I sure feel a lot better.
      I am sorry about your mother but am glad you are discovering nutritional solutions to help you.
      Thanks for sharing and take care! – Dave

  7. Hi. I am about to embark on this healthy journey!
    I was diagnosed with SLE/RA when I was 18. I’m about to turn 45. I developed TTP while pregnant with my son in 1991. My kidneys shut down almost completely. Normal people have anywhere from 200,000 to 400,000 platelets to clot their blood. I delivered my son with a platelet level under 7,000. I should have bled to death and being in labor with failing kidneys, blood pressure 227/190, and toxins coursing through my body should have killed both my son and myself. 18 hours later he was born PERFECT. He’s actually freakishly healthy to this day.
    I, on the other hand spent three months in the hospital. I had chemotherapy, plasmapheresis, blood transfusions and was put on prednisone. I was scheduled for surgery to remove my spleen.
    The morning that surgery was to take place, a case worker and the hospital psychologist came to my room and told me I needed to sign papers. They wanted me to decide who would raise my son because there was a greater than 85% chance I wasn’t going to make it.
    I decided right then… NO! I intended to keep my son, my spleen and my LIFE. I asked them to check my platelets one more time because I was told if the count was above 70,000 they would hold off on the surgery. They were 80,000!
    I still have my spleen. I still have my son. I did have to be on 65 mg of prednisone for a long time, working my way down in dosage for two years. Topped off at 232 lbs.
    I did surprisingly well for 20 years. Keeping the right attitude can cure just about anything. That’s what I believed all those years and it worked. Symptoms returned when I hit forty and no amount of positive thinking would help. I guess I was a lot stronger when I was younger.
    So I found myself the best group of doctors and have tried several different drugs. Plaquenil first. It helped and I took it for almost a year before I became allergic. On to Methotrexate. Worked for a while taking it once a week. But it made me feel so crappy it wasn’t worth it! Prednisone came back into my life at a much smaller dose.
    Now I’m off of everything but quinacrine. It’s a compound drug that turns me yellow. It works, but I would rather be drug free! I’ve learned to deal with the pain throughout all this because nothing takes it away completely.
    But reading all that you’ve posted here gives me new hope. I’ve already started juicing and implemented an exercise routine that my body can tolerate. Hopefully I can use some things I’ve learned here as well.
    I guess I just wanted to share my story (I don’t usually do that) and thank you for sharing yours!

  8. Wow. ….lots of great information and SO glad you have found what works for you!
    I was diagnosed with CREST Syndrome 5 yrs ago and have been trial and error -ing my way along. Any hrain, even quinoa, rice, and raw oats send the fires of inflammation ragging, as do sugars,many fruits and starchy veggies. Working my way into a cleanse right now, so thanks for yhe awesome insights!

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